Aw thanks Molly I wish I still had the figure I had then

It certaily took me back,we had such a fight to get our local health board to agree to the initial financial costs(£80,000) of getting Aaron home,I was told he was the 1st child home on TPN,we had to attend various meeting with the Caremerk nutrition nurse,the hospital team and our local health board... eventually a letter to them saying I'd had interest from one of the big national newspapers wanting to tell Aaron's story of how he wasn't getting out of hospital to go home for the 1st time was all about money!..within a week we got the call to say Aaron could get home..amazing what the threat of spilling the beans on em can achieve!

3 nurses from our main hospital had to be trained in TPN & enteral feeding to come in to give us 2 nights a week off to get a full nights sleep...it's hard to believe how mad life was in those days.
Cat x