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Author Topic: 13 months to 13 years!  (Read 1550 times)
Feline
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« on: September 04, 2009, 02:47:01 PM »

Look what I found...
(click on newspaper clip to enlarge)

Aaron got home from hospital for the very 1st time when he was 13 months old in September 1997(12 yrs ago!)
So from 13 months old...to 13yrs old..thanks to his donor...  Kiss



* Aaron home!001.jpg (267.84 KB, 762x709 - viewed 100 times.)
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Yesterday is a memory,tomorrow is a mystery and today is a gift... which is why we call it the present!
Emma
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« Reply #1 on: September 04, 2009, 03:29:13 PM »

Wow Aaron has definitely changed! 
Emma x
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I'm Emma and I received a heart transplant in 2008, when I was twelve.  Smiley
Molly
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« Reply #2 on: September 04, 2009, 04:54:56 PM »

Wow, what a find Cat! You've not changed much in 12 years Smiley

Moll x x
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Liver, small bowel and pancreas transplant - 19th November 2006. Has had M.E. since July 2008.
Feline
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« Reply #3 on: September 05, 2009, 06:15:22 PM »

Aw thanks Molly I wish I still had the figure I had then  Wink
It certaily took me back,we had such a fight to get our local health board to agree to the initial financial costs(£80,000) of getting Aaron home,I was told he was the 1st child home on TPN,we had to attend various meeting with the Caremerk nutrition nurse,the hospital team and our local health board... eventually a letter to them saying I'd had interest from one of the big national newspapers wanting to tell Aaron's story of how he wasn't getting out of hospital to go home for the 1st time was all about money!..within a week we got the call to say Aaron could get home..amazing what the threat of spilling the beans on em can achieve! Wink 3 nurses from our main hospital had to be trained in TPN & enteral feeding to come in to give us 2 nights a week off to get a full nights sleep...it's hard to believe how mad life was in those days.
Cat x
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Yesterday is a memory,tomorrow is a mystery and today is a gift... which is why we call it the present!
Molly
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« Reply #4 on: September 05, 2009, 06:20:50 PM »

My mum talks a lot about how times have changed since I went home on TPN in 1991!

Moll x x
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Liver, small bowel and pancreas transplant - 19th November 2006. Has had M.E. since July 2008.
Feline
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« Reply #5 on: September 05, 2009, 11:36:00 PM »

Wow Molly 1991 on home TPN..I should have said Aaron may have been the 1st kid home on TPN in Scotland....there were adults. It was pretty daunting I was glad to have PINNT well half Pinnt..thanks for that old PINNT newsletter with Aaron in it it was good reading through it Grin
x
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Yesterday is a memory,tomorrow is a mystery and today is a gift... which is why we call it the present!
Molly
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« Reply #6 on: September 05, 2009, 11:51:05 PM »

PINNT have been great for us too Smiley I'm still a member, so think I'm going to write an article in the near future for Online (PINNT's magazine) to tell my story. Mum talks of how long it used to take to connect and disconnect the TPN and how complicated everything used to be!

Moll x x
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Liver, small bowel and pancreas transplant - 19th November 2006. Has had M.E. since July 2008.
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